Monday, June 22, 2009

My weekend

As of Friday, I planned to be activated on the transplant list ASAP but as the weekend went on my activities where less affected by my health. The air in Maine has been very damp and heavy. This makes it hard for me to breath. I do okay resting but once I get up and start doing stuff I start coughing and my lungs tighten up. I was able to go for a short walk on Sunday morning without my oxygen. I was trying to catch some one's loose dog so it wasn't a planned walk without oxygen. I coughed up a ton but rebounded pretty quick. The good news is Brian and I got the dog and was able to return it to it's owners.

I know deep down I need to be activated. My plan is to take things day by day. I really want to get through this summer. This may sound selfish but once I am activated, I cannot be more than a 4 hour drive to Boston. This means no camp. I want to try to go up as much as possible this summer. Not only because I enjoy it up there but the more we go to camp the more that gets done there. I want the majority of the work that needs to be done be done so when I get my transplant we can just enjoy the camp by hiking, fishing, canoeing, boating, swimming, snow mobiling, etc. These are things that I just don't have the energy to do on most days but have always enjoyed.

My husband and I had a nice time at camp. If you don't already know ,we are remodeling the entire camp. We basically ripped everything out and now we are putting it back together. We are also going to be adding 2 bedrooms and a porch onto it. This weekend we framed up a wall and laid the bathroom floor. Saturday, my husband took me for a ride in the woods. He loves to ride around on old logging roads and find ponds that he can fish. While doing this, he finds some nice scenic views. We tried to get to one of the views but the road was washed out. So he took me in to one of the ponds that he likes to fish. The weather wasn't the best so we didn't get to go out in the boat.

For Fathers day, we stopped at Brian's parents and had a nice dinner with his mom and dad. It had been months since we had been to his parents so we were due. My dad had to work so I didn't get to see him on Father's day. I made sure to call him and will see him next weekend. We see my parents a lot more than than Brian's parents.

Well that is about all that is going on in my life. I will write more sometime this week.

3 comments: said...

All of that stuff you're doing at the camp sounds awesome...Nice work!


CowTown said...

I hope you fully get to enjoy the summer at camp! Sounds so great there. :)

Heidi Karn Barker said...

Hey, Steph. My name is Heidi - I also came to your blog through Ronnie's. Just wanted you to know that you have support as you're starting your transplant journey. I will be 26 next month and received a double-lung transplant last January 2008 (due to CF). If you want, check out the website I kept during the process ( You can do this!