Saturday, February 20, 2010

Just a post

Today was a beautiful spring day in the middle of winter. The sun was shining and the temperature was unbelievable. My nurse and I thought it would be a good day to get out of the house. So Ann (my nurse) and I told my husband he was taking me to lunch.

There is a quaint little restaurant in Cornish, ME that we like to go to. We both had soup and a sandwich. It was so yummy. After lunch we went for a ride and then went home.

The rest of the day was pretty uneventful. Brian slept on the couch as I watched movie on the Lifetime Movie Channel. He just left to go to see Johnny A. in Portland with his friend Mike. I guess this guy is quite a guitarist. So I plan on spending my night on the couch, hooked up to my IV medications and watching chick flicks. I know you are all jealous of me right now. LOL.

Tomorrow, my husband is taking his niece and nephews ice fishing. It will be right about the time my IVs are due so I will be stuck inside again. If it is as nice out as it was today maybe I can get Brian to go for a short walk outside with me.

I am trying to embrace each day that I wake up. Though my life is not very exciting, it is my life and I love it.

Saturday, February 13, 2010


As I sit here hooked up to my IV, I read the blogs of others and wonder why do things happen the way they do?

Why do some get a chance to continue living and some don't?

Why do some just get a taste of living again and others get to indulge in living again?

What is the meaning of all of it?

Does one person contribute more to the earth than another?

Is one person loved more?

Is it just a matter of science?

Do we control our own fate or is there a determined path already chosen for us?

What do you guys think?

Friday, February 5, 2010


As I wait for my transplant, I keep asking why did this happen now. Why couldn't my little lungs hold out longer for a new drug that might make a difference. With CF, we all hope for a cure. I did my best to stay health so I could hopefully take advantage of a cure but unfortunately a cure will not help the scaring in my lungs.

Why can't science be speed up. In the past ten years, I have heard so many promising things but none have come to fruition. Like using stem cell to grow new lung tissue to repair scarring. Or gene therapy that could have actually fixed the messed up gene in some one with CF. Now there is a drug in clinical studies that will help reduce sweat chloride levels — a key indicator of CF. This would mean the mucus in people with CF would not be so thick.

Why do I need a transplant when the future could mean something different to many with CF. Is this a pity party? No! Just keep wondering why me? Why now?

Any way that is my though of the day.

Tuesday, February 2, 2010

The 2nd Annual Dinner/ Dance was a success!

(Brian and I)

As the title, suggest the 2nd annual New Breath 4 Steph Dinner/Dance was a huge success. First, I need to thank Andrea York for pulling the event together. She is amazing. I knew there was a reason that when we were 4, I told her that she was going to be my best friend. She rocks. Without her, this event would have never taken place.

Me and Andrea

In addition to Andrea, there is a very large list of people to thank:
  • Shawn York, Kelly Sastamoine, Tracy Glover and Wendy Martin (my aunt) for going out to get items donated for the Pick-a-Prize Auction.
  • Stereo-Type for donating their time and talent and rocking the house during the dance. Everyone thought you guys were awesome.
  • My mom, Candi Tutlis and my sister, Tonya Carlton for donating so many wonderful baskets and doing some baking for the desert table.

(Me and my Mom)

  • The Sauce cooks: Kim Chaisson and Cindy Beedy.
  • The kitchen crew: Diane Mitchel, Brian Mitchell, Dave Glover, Shawn York and Carol Voilette.
  • The decorating crew:Tracy Glover, Diana Mulkern, Kim St. Germain and Nicole Glover.
  • Michelle Curtis, Tonya Carlton, Melissa Tutlis (my sister), Dan Newell, Steve Tutlis (my dad), Connie Tutlis (my Nana), Candi Tutlis(my mom), Diana Mulkern, Kim St. Germain, Nicole Glover, Donnie St. Germain, and Tracy Glover for helping in any way you could during and after the event.
I hope I didn't miss anyone that helped out at the event.

I know a lot of people dropped off baked goods so thank you to all of you.

A big thanks goes out to all the business that donated items for the pick-a-prize auction. Because of your generosity we had over 90 items.

Thank you to the Eagles for donating the hall for the event.

We had a few large donations. So I want to say a special thanks to the Eagle Riders, Precision Manufacturing Solutions, Inc. (and Mike Gallant), Irish Logging and Lazaro's in memory of Mark Ross.

Last but not least, I need to thank everyone that came out to the event. Thank you for opening your wallets to help me out. Your generosity does not go unnoticed.

With everyone's help New Breath 4 Steph raised just about $6000 to help with my transplant related costs.

The night was so much fun. It was great to see friends that I hadn't see in years. Your support and friendship means a lot to me. Of course, I didn't get to see and talk to everyone that came out but there is always next year.

Love you all!