I would like all my transplant readers to comment on this blog with the type of transplant they had , the date. a little about your surgery and where you had it. I want to show everyone how many people are helped by the generosity of organ donation.
My information: Double Lung Transplant started on 3/17/10 end on 3/18/10. Came of the vent 3/20/10 after needed to go back in to surgery on 3/19/10. I had my transplant at Brigham and Women's Hospital in Boston, MA. I was released on 3/31/10. I spent a total of 13 nights in the hospital after my transplant.
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11 comments:
Hey You!!! I'm so glad you've gotten so far in this new life!!! I'm so proud of you for getting through all you've been through... You're coming up on your first anniversary -- those days quickly become more important than our birthdays! I'm coming up on my eleventh... I don't know how many years I'll have -- I don't plan on going anywhere soon -- and I hope you get twice as many as me!
My information: Double Lung Transplant started on 4/8/2000 ending on 4/9/2000. Came off the vent the afternoon of 4/9/2000... Had my transplant at Loyola in Maywood (near Chicago, IL) I was released on 4/14/2000. I spent a total of 6 days in the hospital after my transplant. I have not been back once... (Except for clinic appointments and all that stuff!!!)
Love, Steve
double-lung transplant due to cystic fibrosis on june 12, 2010. i had my transplant at columbia presbyterian hospital in NYC and was released one day shy of two weeks after my surgery. in the 7 months since my transplant i have turned 29, moved to a new apartment, and spent a LOT of quality time with friends, family, and loved ones. i hope to go back to work soon!
Double lung transplant October 30, 2010 from CF. Came off the vent on November 1 and went home to my near-center (5 blocks) home away from home on November 16th. On December 30 I received correspondence from my donor's family and from that info I was able to find his obituary online and learn a little more about him. What a wonderful gift for the new year! I'm still here in Minneapolis waiting for the word from the docs to say I can go home (it will be at least another month)! I'll celebrate my 25th birthday on January 30 on my 3 month transplantiversary!
Hi, I am jamiebug. I received my transplant on 12/10/2007 at University of Pittsburgh Medical Center just in the nick of time. I was CF/Cepacia my case was a high risk and I was so sick I had been placed on a ventilator three days prior to having lungs available. I had a really hard recovery and was put back on the ventilator through a trachea for several months. I spent a total of 50+ days in the hospital recovering. I have celebrated 4 more wedding anniversaries, 3 birthdays and 4 Christmas' since. I have not been treated for rejection and my day to day is quite 'normal'. I have rode my horses, performed professional comedy improv, and spoken to many groups of people sharing my story, sharing hope and raising Organ Transplant awareness.
I had a double lung tx on 12/24/1991. My surgery lasted about 6 hours, I was out for an hour and rushed back in for a bleed. I was in the hospital for 8 weeks after my surgery, was released on Feb 19, 1992. I was txed at the Cleveland Clinic in Cleveland, OH (I was only the 5th person they txed for cf) and am now followed at University Hospitals of Cleveland in Cleveland, OH.
I also received a kidney tx, living donor from my mom, on July 24, 2001 at University Hospitals of Cleveland and was in the hospital for only 4 days after that tx.
my tx was done on april 18,2010, just 38 days after being listed at duke. left hospital 11 days later
Double-lung tx due to CF on Jan. 4, 2008. I think I came off the vent on Saturday (those ICU days blend together) and I believe I spent 14 days in the hospital. Was readmitted a day later due to intolerance of food while my body was adjusting to the new medications. After that stint, I haven't been admitted since! Life is amazingly more simple and wonderful.
Greetings.
I was tx 7/28/1998 at UNC - Chapel Hill by a terrific surgeon - Dr. Egan, after waiting almost 2.5 yrs for a tx (different rules back then) I had a rough recovery, spending over 6 wks in the hospital and a rather rough first year but after that year was up, its been smooth sailing for me. My new lungs take me all over the world and for them (and their donor) I am grateful!
Hello! I came across this blog doing some online research on double listing. I'm a 28 year old Cystic Fibrosis woman currently listed at Brigham & Women's hospital, being followed out of Childrens in Boston. I've been on the list since 11/1/10. Recently they brought up the idea of listing at the Cleveland Clinic as well. I was wondering if anyone has experience/advice with that? Thanks!!!
Well...obviously I'm kind of late posting..but figured I would anyway :)
Katey: Living Donor Double Lung transplant (due to CF):
February 25, 2004 at 19 years old. I was listed for almost a year, when the doctor's realized I needed lungs soon, with no cadaver lungs having become available. So with a "death sentence of just a few days", I went on life support and flew to California to have the transplant. My Mom and a family friend donated a part of the lungs to save my life. I was in the hospital about 3months after my transplant. I returned to Alabama the 1st of May.
Since then, I graduated from college with an undergraduate degree in Health Information Management, and currently working on my BSN/Nursing Degree. I'm going strong, despite setbacks, such as rejection and frequent pneumonia. I'm extremely blessed and thankful to be living this life.
I have CF and had a double lung transplant in November 2010 at the age of 22. Operation was at The Alfred Hospital in Melbourne, Australia. Had a few bouts of rejection and couple of near misses at the beginning but going well now. Almost coming up to my one year anniversary I'm planning on having a party :D
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