Well, I got home on Sunday. The IV steroids were fine but something happened to my stomach while I was in the hospital. I threw up like 5 times in the hospital, 3 times on my way home and then a couple other times this week. I had horrible stomach pains and GI cramps. Last night, I was awake most of the night in pain plus had my first fever post transplant. I was a little scared and freaked out. I call B&W today and they want me to call and see them if the fever returns over 100.4. The nurse said that something is going around and I probably picked it up.
My lungs feel great. I still have some sternum pain. I will be glad when that is gone. The pain is a different type of pain that I have felt before. It is like a burning feeling. Tylenol seems to get me through the day but by evening I have had enough and take 1/2 of a pain pill. It helps take the edge off.
Brian and I are going to camp this weekend. We both took a few extra days off. The weather looks great. Most of my family will be up there too. This will be my first trip up to camp since September. I am excited to do the things I haven't been able to in years. I wish that my pain was 100% gone but I know it will come in time.
Facebook Badge
Proud supporter of
CF Awareness
Organ Donation
My Blog List
-
-
-
-
-
-
-
-
What I Know Now9 years ago
-
Long time since we updated!9 years ago
-
-
-
Six Years10 years ago
-
-
-
-
-
Trigger Point Injections.11 years ago
-
Graduation and Health Update12 years ago
-
Major Changes12 years ago
-
-
CF Community Post13 years ago
-
Spinal Tapopia13 years ago
-
Feeling lost13 years ago
-
-
No Rejection Bronch 3....14 years ago
-
Adventures14 years ago
-
Waiting is no game....14 years ago
-
-
-
-
-
-
-
-
-
-
-
Subscribe To
Posts
Comments
4 comments:
Hey Beautiful Girl!
These little bumps suck sometimes -- that we have a much bigger reaction to a little "stomach bug" than "normal" people... That won't be forever though -- right now your immune suppression is probably near it's highest and you're at your most vulnerable... They'll gradually ratchet that up and these things won't hit you as hard...
And especially when you're dealing with something like this -- a couple of good pukes can really wrench muscles and aggravate things like your sternum -- don't be shy about taking a pain pill... That's why they give them to us... It's already obvious that you're careful with them -- but if you need one to sleep, take it -- sleep and rest are very important...
It's exciting that you're going on a little get-away!!! Have fun... I hope you have an awesome time...
Love, Steve
Oh cool! Have fun at camp!!
hey steph, just wanted to say hi and tell you i am still reading even if i don't always comment!
much love and thanks for the mentions!!
I'm wayyyy psyched that you went for such a long walk.
I remember going camping for the first time post transplant. . . it's sooooo nice not lugging oxygen around out in the great outdoors~ Have fun!
Oh and the pain in your sternum. . . it can obviously vary from patient to patient, but I am 2.5 yrs post and I still notice it a little. Mine is from the wire in my sternum. Nothing that slows me down, but in a way I don't mind the reminder of what I lived through.
Post a Comment