Tuesday, December 8, 2009

It's amazing what the internet can do!

The passing of a CF friend this weekend has made me think about how many people I have met over the internet that also have CF or loves someone with CF. It is amazing how strong the bond is with these people who I have never met face to face.

In 2005, I heard about a website that would help me connect with other people with cystic fibrosis. I figured this would be a good place to ask others questions and educate myself with the newest information in cystic fibrosis. I never thought that through this site I would make friends that I would never meet but cry when I hear of them passing. During the years, the location of where I met up with these friend have change. Now it might be cf2chat.com, facebook, myspace and personal blogs.

Over the past years, I have heard of too many of my CF friends passing. This past year there has been way too many. Though it is hard to hear when one of my friends pass, I am still glad that I got to connect with them via the internet. Every day I log in to read the blogs of all my CF friends or their loved one. These blogs make me laugh, cry, smile and scream with anger. I am so glad that I have other Cfers and their loved ones that I can share the CF experience with. Though you don't know it, you all bring something unique into my own struggle with cystic fibrosis.

If you are reading this on facebook, please visit my blog at http://cfsteph.blogspot.com to read amazing stories of others living with cystic fibrosis in their lives.


Anonymous said...

I came across your blog via Ronnie Sharpe/Facebook. I am a CF wife and my husband had a double lung transplant on April 7 - it went smoothly and he is doing awesome. He is able to play tennis, ski and do many things that he hasn't been able to do for a long time. He was put on the transplant list and got the call within 3 days based on his rating. We have no regrets whatsoever. I know that talking with other people who had gone through the transplant process helped immeasurably and I will always be grateful for connections made on Facebook with the CF community.

Anonymous said...

Didn't mean to be anonymous :)Carly Dolan